Background
Parenting with a Chronic Disease, Mental Health Condition or Disability – A Survey of Experiences, Support Needs, and Service Delivery Preferences.
The aim of this research is to gain valuable insights into the experiences, needs, and preferences of parents with disabilities, chronic illnesses, or mental health difficulties in Ireland.
Survey
This will include questions about your parenting role, your experiences of being a parent, your experiences of services, and your recommendations for future services. The survey is anonymous, will take approximately 10-15 minutes to complete, and can be accessed via the following link: https://ucc.qualtrics.com/jfe/form/SV_71JlIcqdI9HtoZE
Ethics and data
Ethical approval to conduct this research was granted by the Social Research Ethics Committee (SREC) from University College Cork, on 21st February 2025.
Participation in this study is completely voluntary. There is no obligation to participate, and should you choose to do so you can refuse to answer specific questions or decide to withdraw from the study prior to completing the survey. All information provided will be confidential and your anonymity will be protected throughout the study. You maintain the right to withdraw from the study at any stage up to the point of data submission. At this point, your data will be combined with that of other participants and can no longer be identified (because the survey is anonymous, we cannot link data to specific participants). Completely Automated Public Turing test to tell Computers and Humans Apart (CAPTCHA) tools will be utilised to prevent bots from accessing survey data.
The anonymous data will be stored on a University College Cork supported cloud storage platform Microsoft One Drive. The data will be stored for a minimum of ten years. The information provided may contribute to research publications and/or conference presentations. Some of the data may contribute to an undergraduate thesis in occupational therapy.
Researcher’s contact details
Dearbhla Quirke and Lillian Sheehan 121403196@umail.ucc.ie
Supervisor Prof Margaret McGrath margaretmcgrath@ucc.ie
